About Us
About us
I did not live diagnosis day as a mother
I lived it as a niece.
My uncle Raphael had cerebral palsy. I watched my family search for help and find almost nothing. No plan. No plain language. No one who had been through it saying here is what happens next. We lost Raphael during the pandemic.
That is why this exists.
Mom of Special Needs is built for the parent who walks out of an appointment holding a folder and no idea what to do on Monday. Everything here is written from inside a special needs family, by someone who watched a loved one’s diagnosis change everything.
That is an honest description of where these guides come from. They are not written by a mother of a special needs child. They are written by someone who sat in the same waiting rooms, watched the same family carry the same weight, and spent years reading what was missing.
What you will find here is plain. Short guides you can read on a phone at 2am. Practical steps instead of theory. No jargon, no gatekeeping, and no pretending any of this is simple.
There is also a community of parents who understand the specific joys and the specific exhaustion of raising a child with special needs. You are not the first person to feel this. You are not doing it wrong.
If you are near the beginning, start with Beyond Diagnosis. It is the guide for the first weeks, when every appointment adds a word and none of them add a plan.